Epidermolysis Bullosa, Dystrophic research hub

A Study to Assess the Incidence of Skin Cancers in Patients With Epidermolysis Bullosa Receiving Filsuvez

This study looks at how often people with certain types of epidermolysis bullosa (EB) get skin cancer, especially if they are using a gel called Filsuvez. It follows patients over five years to see if Filsuvez affects their risk of developing skin cancers.