Research.Patient.info
Epidermolysis Bullosa Simplex research hub
2 indexed studies · 2 currently recruiting
- recruitingPHASE2
A 44-week Monocentric Open Study Assessing the Efficacy and Safety of Deucravacitinib in Adults With Inflammatory Genodermatoses
This study is testing a new medicine, deucravacitinib, for adults with specific genetic skin conditions that cause inflammation and blisters or scaly skin. It aims to see how well it works and if it's safe over 44 weeks.
France - recruiting
FARD (RaDiCo Cohort) (RaDiCo-FARD)
This study looks at the daily impact of rare skin conditions on patients and families in the UK. Researchers want to understand how these conditions affect people's lives, including their health, feelings, social life, and finances, by asking patients and families directly.
France