Neutral Lipid Storage Disease research hub

International Registry Study of Neutral Lipid Storage Disease (NLSD) / Triglyceride Deposit Cardiomyovasculopathy (TGCV) and Related Diseases

This study is gathering information worldwide on a rare condition called Neutral Lipid Storage Disease (NLSD) or Triglyceride Deposit Cardiomyovasculopathy (TGCV). It aims to understand how the disease starts, affects patients, and changes over time, helping doctors find better treatments.