Poor prognosis cervico-facial lymphatic malformations (Lymphangima) research hub

RAPAMALYMPH - Evaluation of the Efficacy of Rapamycin in the Treatment of Cervico-facial Lymphatic Malformations of Poor Prognosis

This study looks at how a medicine called Rapamycin treats a rare growth of blood and fluid vessels, called a lymphatic malformation, in the head and neck area that is difficult to treat. We want to see if the medicine can shrink the size of these growths.