Spinal Muscular Atrophy 1 research hub

Exploring Lived Experiences of Families of Children With Spinal Muscular Atrophy(SMA) Type 1 Regarding Feeding and Communication

This study explores how families of children with a severe condition called Spinal Muscular Atrophy Type 1 (SMA1) manage feeding and communication. Researchers want to understand their daily experiences and feelings, especially now that new treatments are available.