- completedPhase II
A randomised, double blind, placebo-controlled study of RAD001 (Everolimus) in the treatment of neurocognitive problems in tuberous sclerosis
This UK study tests whether a medicine called everolimus can improve memory and everyday thinking skills in people with tuberous sclerosis. Participants take daily tablets for six months while having regular check-ups and memory tests to see if the treatment helps with common brain-related symptoms of the condition.
United Kingdom · Wales - recruiting
TSC Biosample Repository and Natural History Database
This project collects samples like blood and tissues, along with health information, from people with Tuberous Sclerosis (TSC) or Lymphangioleiomyomatosis (LAM). Scientists use these to understand these conditions better and help develop new treatments for body parts like the brain, kidneys, and lungs.
United States · Canada - recruiting
National Registry of Rare Kidney Diseases
This registry is collecting information from people with rare kidney diseases across the UK. It aims to improve understanding, create better care guidelines, and help develop new treatments for these conditions. If you have a rare kidney disease, your information could help.
United Kingdom