Erythropoietic Protoporphyria (EPP) research hub

Observational Study of Adults and Adolescents With Erythropoietic Protoporphyria (EPP) and X-linked Porphyria (XLP)

This study looks at how Erythropoietic Protoporphyria (EPP) and X-linked Porphyria (XLP) affect people aged 12 and over. It's an observational study, meaning you won't get new treatments, but researchers will collect information about your condition over 6 months.