Erythropoietic Protoporphyria (EPP) research hub
3 indexed studies · 0 currently recruiting
- active not recruitingPHASE3
Study of Bitopertin in Participants With EPP or XLP (APOLLO)
This study is looking into a new medication called bitopertin for people with EPP or XLP. Researchers want to see if it's safe and helps people spend more time in the sun without pain, and how it affects certain blood chemicals.
United States · Australia · Belgium - authorisedTherapeutic confirmatory (Phase III)
HELIOS: An Open-Label, Long-Term Study to Investigate the Safety, Tolerability, and Efficacy of DISC-1459 (Bitopertin) in Participants with Erythropoietic Protoporphyria (EPP) or X-Linked Protoporphyria (XLP).
This study is looking at a new medicine called Bitopertin for people with rare conditions called Erythropoietic Protoporphyria (EPP) or X-Linked Protoporphyria (XLP). It aims to check if the medicine is safe, if people can tolerate it well, and if it helps them spend more time in sunlight without pain.
Italy · France · Ireland - active not recruitingPHASE3
INcreased Sun Exposure Without Pain In Research Participants With EPP or XLP
This study is looking into a new medication called Dersimelagon for people aged 12-75 with rare conditions called EPP or XLP. It aims to see if the medication can help them spend more time in the sun without experiencing painful symptoms like burning or tingling.
United States · Australia · Bulgaria