- Recruiting
The United Kingdom National Registry for Myotonic Dystrophy
This UK registry collects information from people with Myotonic Dystrophy (DM1 or DM2). It helps researchers understand the condition better and find people who might be interested in future studies or clinical trials to develop new treatments.
For: Myotonic DystrophyUnited Kingdom - Recruiting
UK SMA Patient Registry
This registry is for people with Spinal Muscular Atrophy (SMA) in the UK and Ireland. It gathers information online to help doctors and researchers better understand SMA, which is a condition that affects how muscles work. You can share details about your health and daily life.
For: Spinal Muscular Atrophy · SMAUnited Kingdom - Recruiting
The United Kingdom Facioscapulohumeral Muscular Dystrophy Patient Registry
This study is gathering information about people in the UK who have Facioscapulohumeral Muscular Dystrophy (FSHD). It helps researchers understand the condition better and find people who might want to join future medical trials for new treatments.
For: Facioscapulohumeral Muscular DystrophyUnited Kingdom