RecruitingOBSERVATIONAL

Portsmouth CORE-D Routine Care Data Repository

This project creates a secure database using information from adult patients who have been to Portsmouth hospital. All the patient details are removed so no one can be identified. Researchers use this anonymous information to understand how illnesses progress, how different treatments work, and how to spot early signs that a patient might be getting worse. This helps develop better tools and systems for doctors and nurses. The main goal is to improve patient care, make sure people get help when they need it most, and even help people in the community avoid going to hospital. It's all about using information to make healthcare safer and more effective for everyone.

At a glance

Status

Recruiting

Sponsor

Portsmouth Hospitals NHS Trust

Enrolment target

750,000

Start

19 Aug 2021

Estimated completion

01 Apr 2026

Adult Hospital Patients at Risk of Adverse Outcomes

What is this study about?

Imagine all the information gathered during your hospital visits – things like your age, what illness you have, any test results, and what treatments you received. This study takes that kind of routine information from adult patients at Portsmouth hospital and puts it into a special, secure database. But here's the really important part: all personal details are completely removed. This means that no one looking at the database can ever identify individual patients.

Researchers then use this anonymous information to learn more about different health conditions and how they affect people. For example, they can track how often certain problems occur or see what treatments seem to work best. They can also develop new computer tools – often called 'risk models' – which can help doctors and nurses quickly identify patients who might be at risk of becoming more unwell, either in the hospital or even before they get to the hospital. This means care can be given more quickly, potentially preventing serious health problems.

By understanding patterns and trends from many different patients, this database helps improve the quality of care for everyone. It allows healthcare professionals to make informed decisions, create better care plans, and even test new ways to deliver healthcare, ultimately aiming to make patient outcomes better across the board.

Key takeaways

This study uses anonymous hospital patient information.
It aims to improve patient care and save lives by understanding illnesses better.
No personal details are ever shared or identified.
You don't need to do anything to participate.
You can choose for your data not to be included if you wish.

Who may be eligible?

This study looks at information from adults who have visited Portsmouth hospital or received services from them. If you're an adult patient in this situation, your anonymous information might be included.

However, there are a couple of reasons why your information wouldn't be used. If you've told NHS Digital that you don't want your information used for research, then it won't be.

Also, if you've specifically contacted Portsmouth hospital to say that you don't want your records included in this research, then your information will not be part of the database. The study includes people aged 16 and over, of any gender.

Could this study suit you?

Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.

Are you an adult (16 years or older)?
Have you received care or service from Portsmouth hospital?
Have you registered an opt-out with NHS Digital for research?
Have you contacted Portsmouth hospital to ask for your records not to be included in this study?

Answer every question to see your result.

What does participation involve?

You won't be asked to do anything extra or change your usual hospital care. This isn't a study where you take new medicines, have extra appointments, or fill out surveys. Instead, researchers simply use the routine information that's already collected when you receive care at Portsmouth hospital. Because it uses existing, anonymous data, there's no direct participation needed from you, no visits, and no follow-up. Your part is completely passive and your identity is always protected.

Potential risks and benefits

Since this study only uses anonymous information that's already collected during your care, there are no direct risks to you. Your personal privacy is protected as all identifying details are removed. The potential benefits are for future patients: by learning from this anonymous data, doctors and researchers can develop better ways to predict illness, improve treatments, and make healthcare more effective and timely for everyone. You have the right to withdraw your consent for your anonymous data to be included at any time by contacting the hospital.

Locations (1)

Some site locations are approximate. We're improving this — please verify with the trial team before travelling.

Queen Alexandra Hospital
Verified postcode
Portsmouth, United Kingdom· Recruiting

Common questions

Will my personal details be safe?

Absolutely. All personal details are completely removed from your records before they are used in this database, so no one can identify you. It's fully anonymous.

Do I need to do anything to be part of this?

No, you don't need to do anything. This study uses information that's already collected during your routine hospital care. You won't have extra appointments or tests.

What if I don't want my information used?

You can opt out. You can register an opt-out with NHS Digital, or you can contact Portsmouth hospital directly and ask them not to include your records in this study.

How will this study help people?

By looking at information from many patients, researchers can better understand diseases, develop tools to spot sick patients sooner, and ultimately improve the quality and timing of care for everyone.

Why is it called 'depersonalised data'?

It means all the personal information that could identify you, like your name or address, has been removed. It's a key step to protect your privacy while still allowing valuable research.

How to find out more

Paul Meredith, PhD

paul.meredith@porthosp.nhs.uk 023 92286000 Official trial record

Always speak to your GP or specialist before deciding to take part in a study.