Optimising the Delivery of Diabetes Distress Informed Care for Its Prevention, Detection, and Management in Adults With Type 1 Diabetes: a Feasibility Study (D-stress Study)
Living with type 1 diabetes can be tough emotionally for many, leading to feelings like worry, frustration, or burnout. This is known as diabetes distress, and it can impact quality of life and diabetes management. The 'D-stress Study' is a trial aiming to improve how the NHS supports people struggling with these emotions. We've worked with global experts to create a new care path. This involves training diabetes teams to recognise, assess, and discuss diabetes distress during regular appointments. If someone is experiencing significant distress, they might be offered a place in an online group program designed to help them manage their diabetes and feelings. This study is testing if this new approach works well within the NHS.
At a glance
What is this study about?
Living with type 1 diabetes means constantly managing your condition, and for many, this can be incredibly challenging emotionally. You might feel worried, frustrated, overwhelmed, or just plain burnt out. These feelings are quite common and are known as 'diabetes distress'. It's important to understand that diabetes distress is not a weakness; it's a real response to the daily demands of type 1 diabetes, and it can make it harder to look after yourself as well as you'd like.
Here in the UK, we want to make sure the NHS is doing its very best to support people who are feeling this emotional strain. That's why we've teamed up with diabetes distress specialists from around the world to create a new way of providing care. This new approach involves teaching diabetes healthcare teams to better understand, spot, and talk about diabetes distress during your routine check-ups.
If you're found to be experiencing a high level of diabetes distress, you might be offered the chance to take part in a special online group program. This program is designed to give you tools and support to help you manage both your type 1 diabetes and your emotions more effectively. This study is a 'feasibility study', which means we're testing if this new pathway works well and can be successfully put into practice in NHS clinics.
Key takeaways
- This study aims to improve emotional support for adults with type 1 diabetes.
- It focuses on 'diabetes distress' – the emotional challenges of living with the condition.
- NHS teams will be trained to better recognise and discuss these feelings.
- An optional online group program may be offered to those with high distress.
- The study is testing a new care pathway within the NHS.
- Your active involvement could help shape future diabetes support.
Who may be eligible?
This study is looking for adults aged 18 or over who have had type 1 diabetes for more than a year. To join, you also need to have used a continuous glucose monitor (CGM) regularly in the three months before the study starts. We're also inviting healthcare professionals from diabetes teams who are willing to learn about this new approach, as well as family members or friends who help care for someone with type 1 diabetes and are happy to be involved.
There are a few reasons why someone might not be able to join. If you've been diagnosed with type 1 diabetes less than a year ago, you won't be eligible. This is because the first year can be very different and intense. Pregnant women also can't take part, as pregnancy adds its own unique challenges. We also need to carefully consider people with certain mental health conditions, like severe depression or psychosis, on a case-by-case basis to make sure the study is right for them.
- Are you 18 years old or older?
- Have you had type 1 diabetes for more than one year?
- Have you used a continuous glucose monitor (CGM) in the last three months?
- Are you not currently pregnant?
- Do you feel your mental health is stable and well-managed?
This is a guide only — the research team will confirm whether you can take part.
What does participation involve?
If you decide to take part in this study, the main part for you will be that your diabetes healthcare team will have received special training. This means they will be better equipped to recognise, ask about, and discuss diabetes distress during your regular appointments. If they identify that you have high levels of diabetes distress, you might then be invited to join an online group program. This program involves guided sessions designed to help you manage your emotions and diabetes self-care. The study will also involve some questionnaires to understand how you're feeling and how well the new care pathway is working. The total duration of your participation will depend on whether you join the online group program, but generally, it will involve being observed within your usual appointments for a period, with potential for several weeks if participating in the group program.
Potential risks and benefits
Locations (3)
- Royal United Hospitals BathBath, United Kingdom· Recruiting
- University Hospitals Leicester NHS TrustLeicester, United Kingdom· Recruiting
- Guy's and St Thomas' Hospitals NHS TrustLondon, United Kingdom· Recruiting
Common questions
What is 'diabetes distress'?
Diabetes distress means feeling worried, frustrated, sad, or overwhelmed because of the daily demands of living with and managing type 1 diabetes.
Why is this study important?
This study helps the NHS learn the best ways to support adults with type 1 diabetes who are struggling emotionally, improving their overall care.
Will I have to take any new medication?
No, this study does not involve any new medications. It focuses on improving emotional support and education.
What does an 'online group program' involve?
It's a structured program, delivered online with other people who have type 1 diabetes, offering tools and discussions to help manage your diabetes and feelings.
Can my family or friends also be involved?
Yes, if you agree, a family member or friend who helps you with your care can also take part in certain aspects of the study.
How to find out more
Always speak to your GP or specialist before deciding to take part in a study.
Interested in taking part?
Discussion
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