RecruitingOBSERVATIONAL

Barriers to Physical Activity in Patients With Cognitive, Neuromotor or Sensory Impairments During Aging

This study wants to figure out why people with disabilities, such as those affecting their thinking, movement, or senses, often don't get enough physical activity. It will look at different reasons, like personal feelings, how organisations are set up, things in society, and how others around them behave. Currently, we don't fully understand how these challenges change over time, or how medical care and social support might help. The main goal is to describe these difficulties, including how they might affect someone's ability to take part in sports, as people with these conditions get older. This will help doctors and caregivers better support people in staying active, which is good for everyone's health.

At a glance

Status

Recruiting

Sponsor

Institut de Sante Parasport Connecte Synergies

Enrolment target

1,000

Start

01 Apr 2022

Estimated completion

01 Feb 2034

Disability or Chronic Disease Leading to Disablement

What is this study about?

Many people with disabilities find it harder to be physically active compared to others. This study is designed to explore the different reasons why this might be the case. These reasons can be quite varied, from personal feelings about exercise to how health services are organised, or even what society expects. For example, it might be tough to find accessible gyms or activities, or someone might feel too tired or shy to participate.

At the moment, we don't know much about how these challenges change as people with disabilities get older. We also don't fully understand if the medical care and support received over time help to reduce these difficulties. This study hopes to fill these gaps in our knowledge.

The main aim is to clearly describe all these difficulties in people who have problems with their thinking, movement, or senses. This includes understanding the hurdles they face in everyday activity and even in competitive sports. By gathering this information, researchers hope to better understand how to help people with disabilities stay active and healthy throughout their lives.

Key takeaways

The study aims to understand why people with disabilities struggle to be active.
It covers disabilities affecting thinking, movement, or senses.
Researchers will look at existing medical records, so no new tests are needed.
Participation will not change your regular medical care.
The findings could help improve future support for physical activity.
You can withdraw from the study at any time.

Who may be eligible?

This study is looking for people aged 6 years and older who are receiving care from the Parasport Health Unit at a university hospital. You would need to have an impairment that affects your thinking, movement (like walking or balance), or your senses (like sight or hearing).

If you're interested in taking part, you or a close family member (if you can't make decisions yourself) would need to agree to join. If you're under 18, both parents or guardians would need to give their permission. You also need to be covered by a social security scheme.

People who are under court protection would not be able to join this study.

Could this study suit you?

Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.

Are you 6 years old or older?
Do you currently receive care at the Parasport Health Unit?
Do you have a condition affecting your thinking, movement, or senses?
Are you, or your guardian, happy to be part of the study?
Are you covered by a social security scheme?

Answer every question to see your result.

What does participation involve?

If you decide to take part, you won't need to do anything extra beyond your usual appointments and care at the Parasport Health Unit. The researchers will gather information from your existing medical records. This means they will look at details from your hospital visits, including results from any health checks, scans, or other tests you've already had. There are no additional visits, assessments, medications, or specific follow-up appointments required for this study, and your participation won't change your standard care. The total duration of your involvement will relate to the data already collected during your ongoing care.

Potential risks and benefits

Taking part in this study won't directly improve your health, as it mainly involves looking at existing medical records. However, the information gathered could help researchers understand more about the barriers to physical activity for people with similar conditions, which might lead to better support and services in the future. There are no direct medical risks involved in participating, as you wouldn't be undergoing any new tests or treatments for the study. Your medical records would be handled carefully to protect your privacy. Remember, you have the right to withdraw your consent to participate at any time without affecting your medical care.

Locations (1)

Department of Physical Medicine and Rehabilitation, Raymond Poincaré Hospital, AP-HP
Verified postcode
Garches, France· Recruiting

Common questions

What is 'physical activity' in this study?

Physical activity refers to any movement that makes your body work, from daily tasks to sports or exercise.

What kind of disabilities are included?

The study focuses on disabilities affecting thinking (cognitive), movement (neuromotor), or senses (sensory).

Will my personal information be kept private?

Yes, all data from your medical records will be handled carefully and confidentially to protect your privacy.

Do I need to do anything extra if I join?

No, you don't need to do anything extra. Researchers will only use information from your existing medical records.

Will I find out the results of the study?

While individual results won't be given, general findings from the study may be shared publicly once it's completed.

How to find out more

François Genêt, MD-PhD

francois.genet@aphp.fr +33 1 47 10 70 82 Official trial record

Always speak to your GP or specialist before deciding to take part in a study.