Study of the Prevalence of Endometriosis and Adenomyosis
This study wants to find out how many women who are considering freezing their eggs also have endometriosis or adenomyosis. These conditions can cause pain, difficulties getting pregnant, or unusual bleeding. We'll use special ultrasound scans to check for them. We'll also collect information about each woman's general health, any symptoms they experience, and how they feel emotionally, including levels of anxiety and depression, and their overall quality of life. By understanding more about these conditions in women who are planning for their fertility, we hope to improve how they are diagnosed and treated in the future and help develop ways to prevent them.
At a glance
What is this study about?
This study is looking into two common health conditions that affect women: endometriosis and adenomyosis. These conditions happen when tissue similar to the lining of the womb grows in other parts of the body (endometriosis) or into the muscular wall of the womb itself (adenomyosis). They can cause various problems for some women, such as ongoing pelvic pain, heavy periods, or make it harder to get pregnant.
Surprisingly, many women with these conditions don't have any symptoms, while others have very strong ones. This makes it tricky for doctors to figure out how many women actually have them, and often, it can take a long time to get a diagnosis. Finding out more about how common these conditions are, especially in women who are planning for their future fertility, is really important. It will help doctors understand better how to spot these conditions earlier and improve how women are looked after.
We also want to see if there's a link between having endometriosis or adenomyosis and how women feel emotionally, like experiencing anxiety or depression, and their overall quality of life. By gathering all this information, we hope to make a real difference in preventing and treating these conditions, ultimately improving the health and well-being of many women.
Key takeaways
- Study focuses on endometriosis and adenomyosis.
- Aims to find out how common these conditions are in women freezing their eggs.
- Uses ultrasound scans and questionnaires.
- No new treatments or medicines are involved.
- Results could lead to better diagnosis and care in the future.
- Your participation is voluntary and confidential.
Who may be eligible?
This study is looking for women aged between 29 and 37 years old. You would be considered for this study if you are attending the Reproductive Medicine Unit Port Royal, Cochin, to discuss freezing your eggs for non-medical reasons – meaning you're doing it as a choice, not because of a specific health issue.
It's important that you are happy to take part in the research after understanding what it involves, and that you are registered with a social security scheme. We unfortunately can't include women who are currently pregnant, or those who have certain known issues with their reproductive organs.
Also, if you are under court protection or guardianship, you wouldn't be able to join this study. If you choose not to take part, that's perfectly fine too, and it won't affect your care in any way.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Are you a woman aged between 29 and 37?
- Are you discussing freezing your eggs for non-medical reasons at the Reproductive Medicine Unit Port Royal, Cochin?
- Are you happy to take part after learning about the study?
- Are you not currently pregnant?
- Do you not have any known malformations of your reproductive organs?
- Are you not under court protection or guardianship?
What does participation involve?
This study involves you attending the clinic for your usual follow-up appointments related to fertility preservation. It does not involve any extra visits or new medications. During your routine appointments, our team will use a transvaginal pelvic ultrasound to look for signs of endometriosis and adenomyosis. This is a common and safe imaging test. We will also ask you to complete some questionnaires to gather information about your general health, any symptoms you have, and how you're feeling emotionally, including questions about anxiety, depression, and your quality of life. The total duration of your participation would align with your existing fertility preservation follow-up schedule.
Potential risks and benefits
Locations (1)
- Gynécologie Obstétrique II et médecine de la reproduction, Hôpital Cochin, Port RoyalVerified postcodeParis, France· Recruiting
Common questions
What are endometriosis and adenomyosis?
They are conditions where tissue similar to the womb lining grows outside the womb (endometriosis) or into the wall of the womb (adenomyosis). They can cause pain, heavy bleeding, or difficulty getting pregnant.
Will I receive a special treatment if I join this study?
No, this study is about understanding how common these conditions are. We won't be giving new treatments or medications as part of it.
How will my privacy be protected?
All your information will be kept confidential and anonymised as much as possible, meaning your personal details won't be linked to the study findings.
What happens if they find signs of endometriosis or adenomyosis?
If signs are found, your doctor will discuss these findings with you, just as they would with any other test result, and explain any next steps or options available.
Do I have to take part if I'm asked?
No, participating is completely voluntary. Your decision won't affect your medical care or your relationship with your doctor in any way.
How to find out more
Mathilde BOURDON, MD
Always speak to your GP or specialist before deciding to take part in a study.
Interested in taking part?
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