Survey on Epidemiology of Hypoparathyroidism in France

To be part of this study, you need to meet a few simple requirements. First, a doctor must have told you that you have chronic, or long-term, hypoparathyroidism. This means it's an ongoing condition, not just a short-term problem.

You also need to be living in France. This study is specifically looking at people within France to understand the condition there.

However, some people won't be able to join. For example, if you have a different type of hypoparathyroidism called "pseudo-hypoparathyroidism," or if your hypoparathyroidism is just a temporary or acute issue, this study isn't for you. Also, if you simply prefer not to share your health information for research, that's perfectly fine, and you wouldn't be included.

If you take part in this study, you wouldn't be asked to change any of your current treatments or visit any new clinics. This study doesn't involve giving you any new medication or specific medical procedures. Instead, it's about collecting information that doctors already have about your health. This means the researchers will look at your medical records to gather details about your hypoparathyroidism diagnosis, the medicines you take for it, and any related health problems you've experienced. There are no extra tests, doctor visits, or follow-up appointments required from you. The study involves looking back at existing data, so there's no set total duration for your direct involvement beyond agreeing for your anonymised information to be used.