CompletedObservational

Imperial cardiac conditions registry

This research project, called the Imperial Cardiac Conditions Registry, is looking at inherited heart conditions. It's part of a bigger programme using artificial intelligence (AI) to understand health problems. For this study, scientists are reviewing existing heart test results, like ECGs and heart scans, that have already been collected during routine NHS care. They hope AI will help them learn how these conditions develop over time. This could lead to doctors being able to diagnose them sooner and offer treatments more suited to individual patients in the future. You don't need to do anything to be part of it, as it only uses information already collected by the NHS.

At a glance

Status

Completed

Sponsor

Imperial College London

Enrolment target

10,000

Start

01 Jan 2000

Estimated completion

01 Jan 2025

Inherited cardiac conditions

What is this study about?

Imagine a big jigsaw puzzle where each piece is a bit of information about someone's heart. This study, called the Imperial Cardiac Conditions Registry, is trying to put together these pieces for people with inherited heart problems. Inherited heart conditions are those that can run in families and affect how the heart works.

The researchers are using powerful computer programs, known as artificial intelligence (AI), to look at lots of different heart test results. These tests include things like ECGs (which check the heart's electrical activity), pacemaker data (if someone has one), and heart scans (which show pictures of the heart). By looking at all this information together, the AI can spot patterns that might be hard for humans to see.

The main goal is to understand these inherited heart conditions much better. If we can see how they develop and change over time, doctors might be able to find them earlier, perhaps even before someone has serious symptoms. This could also help doctors offer more personalised care, meaning treatments that are best suited for each individual person. This study uses information already collected by the NHS, so it won't involve new tests or appointments for patients.

Key takeaways

Studies inherited heart conditions using existing NHS data.
Aims to improve diagnosis and personalised care in the future.
Uses artificial intelligence (AI) to analyse heart test results.
No new tests or appointments for participants.
Involves adults (18+) with known or suspected inherited heart conditions.
Funded by the British Heart Foundation.

Who may be eligible?

This study focuses on people who have already received care from the NHS for their heart.

To be considered for this study, you need to be an adult, aged 18 or older. You should also have had heart tests as part of your usual NHS care and have been told you have, or might have, an inherited heart condition.

The study does not include anyone under the age of 18.

Could this study suit you?

Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.

Are you 18 years old or older?
Do you receive care from the NHS?
Have you had heart tests as part of your NHS care?
Do you have a known or suspected inherited heart condition?

Answer every question to see your result.

What does participation involve?

Taking part in this study won't change anything for you as a patient. The researchers are only looking at information that has already been collected during your routine NHS visits and tests. This means you won't have any extra appointments, tests, or medication because of this study. You also won't be contacted directly by the study team. It simply uses existing anonymised medical records.

Potential risks and benefits

There are no direct benefits or risks to you if your data is used in this study, because you won't be actively involved and no new information will be collected from you. The study only looks at existing, anonymised medical information. However, the findings from this research could be very helpful in the future. They could lead to better ways for doctors to diagnose and treat people with inherited heart conditions, potentially improving care for many others down the line. You always have the right to ask your NHS care team if you can withdraw your data from being used in such research.

Locations (1)

Some site locations are approximate. We're improving this — please verify with the trial team before travelling.

Imperial College Healthcare NHS Trust
City only
London, United Kingdom

Common questions

What kind of heart conditions is this study looking at?

It's focused on 'inherited cardiac conditions', which are heart problems that can be passed down through families.

Will I have to do anything if my data is used?

No, you won't need to do anything. The study only uses information that has already been collected during your usual NHS care. You won't have new appointments or tests.

How will my personal information be kept safe?

The study uses existing medical records. Researchers follow strict rules to keep all patient information private and secure, often by using anonymised data where your name isn't directly linked.

What is 'artificial intelligence' (AI) in this study?

AI is like a very smart computer program that can look at many heart test results and find patterns that might help doctors understand your condition better.

Who is paying for this research?

The study is funded by the British Heart Foundation, a well-known charity in the UK.

How to find out more

Amanda Varnava

amanda.varnava@nhs.net +44 20 3313 1000 Official trial record

Always speak to your GP or specialist before deciding to take part in a study.