A Lay Navigation Intervention for Patients With Lung Cancer
This study is investigating a new support service called 'Care & Connect' for individuals living with lung cancer. Lung cancer is a significant health concern in Canada, and many patients face challenges such as emotional distress and difficulty accessing helpful resources. This program uses trained volunteers, known as 'lay navigators,' to actively support patients. They help by offering information, emotional comfort, and guiding patients to relevant treatment and support services. The main goal of this pilot study is to figure out if 'Care & Connect' is practical, acceptable to patients, and to get an early idea of how effective it might be in improving well-being and access to care for people with lung cancer. This research aims to fill a gap in understanding how such support programs can assist patients.
At a glance
What is this study about?
When someone is diagnosed with lung cancer, it can be a really challenging time. Patients often have many needs, including needing emotional support, information about their condition, and help finding their way through the healthcare system. Sometimes, it can be difficult to get all the help and support you need.
This study is looking at a special program called 'Care & Connect'. This program uses trained volunteers, who are not medical professionals, to act as 'lay navigators'. These volunteers work closely with patients to offer support, provide information, and help connect them with various services like emotional support or other healthcare resources. The main idea is to reduce stress, make sure patients feel supported, and help them access the care they need more easily.
The researchers want to see if 'Care & Connect' is a good way to help people with lung cancer. They will be looking at whether the program is easy to use for both patients and the healthcare team, and if patients find it helpful. Ultimately, the goal is to improve the experience and care for people living with lung cancer by understanding how a volunteer-led support program can make a positive difference.
Key takeaways
- Tests a volunteer-led support program for lung cancer patients.
- Aims to reduce distress and improve access to care.
- Participation involves surveys over six months.
- No new medicines or treatments are part of the study.
- Your feedback helps improve future patient support.
- Joining is voluntary and won't affect your medical care.
Who may be eligible?
To join this study, you need to be at least 18 years old and have a diagnosis of either non-small cell lung cancer (NSCLC) or small cell lung cancer (SCLC), no matter what stage it is. You would also need to have already had your first appointment at the Medical Oncology Lung Cancer Clinic at Princess Margaret Cancer Centre.
There are a few reasons why you might not be able to join. For example, if you're already taking part in another similar support program study at the same hospital, or if your medical records show a safety concern that would make this program unsuitable for you. Also, if you only visit Princess Margaret for clinical trial appointments, or if you can't communicate or read in English, this study might not be suitable.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Are you 18 years old or older?
- Do you have non-small cell lung cancer or small cell lung cancer?
- Have you had your first appointment at the Princess Margaret Cancer Centre Lung Clinic?
- Are you able to speak and read in English?
What does participation involve?
If you decide to join this study, you'll be randomly put into one of two groups. One group will receive the 'Care & Connect' support program, and the other group will continue with their usual care. You won't know which group you're in until you start.
Over six months, you'll be asked to complete some surveys at the very beginning, then again after 3 months, and a final time after 6 months. These surveys will ask about your well-being and how satisfied you are with your care. For a small number of people in the 'Care & Connect' group, there might also be a short chat or interview at the end of the study to get your thoughts on the program. There are no new medications involved, and the entire study lasts for six months.
Potential risks and benefits
Locations (1)
- Princess Margaret Cancer Center, University Health NetworkVerified postcodeToronto, Canada
Common questions
What is 'Care & Connect'?
It's a support program where trained volunteers help lung cancer patients with information, emotional support, and finding helpful resources.
How long will the study last if I join?
The study will last for a total of six months from when you start.
Will I have to take new medicine?
No, this study does not involve any new medicines or treatments. It's about a support program.
What kind of questions will I be asked?
You'll be asked about your overall well-being and how satisfied you are with your care.
Can I leave the study whenever I want?
Yes, you are free to leave the study at any time, and it won't affect your medical care.
How to find out more
Gilla K Shapiro, PhD
Always speak to your GP or specialist before deciding to take part in a study.
Interested in taking part?
Discussion
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