CongenItal Naevus Cohort for Longitudinal Evaluation

You might have a birthmark, or your child might have one, called a congenital naevus. These are skin marks that are there from birth and grow as your child grows. They can look very different from person to person. Sometimes, these birthmarks can be quite large, and there are many questions about the best way to look after them. This study aims to help us understand these birthmarks better, especially the bigger ones.

We want to find out if larger birthmarks might be linked to any developmental differences in children, as this isn't fully understood yet. We also know that there's a very small chance some birthmarks could develop into a more serious skin condition called melanoma, and we want to learn more about this risk, especially for larger birthmarks. Beyond the physical aspects, we recognise that having a visible birthmark can sometimes cause worry for parents and might affect how a child feels about themselves and interacts with others as they grow up. The study will look into these emotional and social effects too.

Right now, doctors don't always agree on the best way to manage medium to giant birthmarks. This study is really important because it will give healthcare professionals clearer guidance on monitoring children with these birthmarks, including whether certain scans are helpful and when surgery might be considered. Ultimately, by learning more, we hope to improve the care and quality of life for children with congenital naevi and support their families.