RecruitingOBSERVATIONAL

Institut Paoli Calmettes Ovarian Cancer Database

This study is creating a collection of health information, called a database, for women diagnosed with ovarian cancer at Institut Paoli-Calmettes. Think of it like putting together a detailed record book for many patients. The aim is to gather a lot of information about ovarian cancer, including how it affects different people and what treatments they receive. By looking at all this information together, doctors and researchers hope to learn more about the disease. This knowledge could help improve our understanding of ovarian cancer and potentially lead to better care for patients in the future. If you are a woman with an ovarian cancer diagnosis at this hospital, your anonymous health data might be included.

At a glance

Status

Recruiting

Sponsor

Institut Paoli-Calmettes

Enrolment target

6,000

Start

01 Jan 2000

Estimated completion

01 Dec 2030

Ovarian Neoplasms

What is this study about?

This study, called the Institut Paoli Calmettes Ovarian Cancer Database, isn't a typical clinical trial where you try new treatments. Instead, it's about collecting existing health information from patients. Imagine doctors keeping very detailed, anonymous records about many women who have been diagnosed with ovarian cancer at the Institut Paoli-Calmettes hospital. This includes things like their diagnosis details, treatments they received, and how they responded.

The main idea behind this database is to create a large pool of real-world information. By looking at all these records together, researchers can identify patterns, trends, and connections that might not be obvious when looking at individual patients. For example, they might be able to see which treatments work best for certain types of ovarian cancer, or understand more about how the disease progresses over time.

This kind of study is really important because it helps scientists and doctors learn from the experiences of many patients. The knowledge gained from this database can then be used to improve our understanding of ovarian cancer, help doctors make better decisions about care, and potentially inspire new research into more effective treatments. It's all about using existing information to make future care better for everyone affected by ovarian cancer.

Key takeaways

This study collects anonymous patient information on ovarian cancer.
It's a database, not a trial of new treatments.
Data comes from patients at Institut Paoli-Calmettes.
Aims to improve understanding and future care for ovarian cancer.
No extra visits, tests, or medication are required.
Your privacy is protected, and you can opt out.

Who may be eligible?

To be included in this study's database, you must be a woman who has been diagnosed with ovarian cancer at the Institut Paoli-Calmettes hospital. You need to be between 18 and 95 years old.

There are also a couple of reasons why your information wouldn't be included. If your diagnosis is specifically fallopian tube cancer, rather than ovarian cancer, your data would not be part of this particular database.

Since this study collects existing information, you wouldn't typically need to do anything extra to take part if your medical records meet these criteria and are held by the hospital.

Could this study suit you?

Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.

I am a woman diagnosed with ovarian cancer.
I am a patient at Institut Paoli-Calmettes.
I am between 18 and 95 years old.
My diagnosis is specifically ovarian cancer, not fallopian tube cancer.

Answer every question to see your result.

What does participation involve?

Taking part in this study means that anonymous health information already collected as part of your care at Institut Paoli-Calmettes will be included in a research database. You won't have any extra hospital visits, tests, or medication to take specifically for this study. Your treatment path will remain exactly the same as decided by you and your doctors. The study simply aims to gather and analyse information that already exists in your medical records, like your diagnosis, treatment you've received, and how you responded to it. There is no specific duration for your participation as it's about data collection over time from existing records.

Potential risks and benefits

The main benefit of being included in this database is that your anonymous health information can contribute to a better understanding of ovarian cancer, which may help current and future patients. Because this study only uses existing, anonymous medical records, there are no physical risks involved like there might be with a treatment trial. Your personal identity will be protected. If for any reason you do not wish for your anonymous data to be included, you always have the right to withdraw your consent. Your decision will not affect your medical care in any way.

Locations (1)

Institut Paoli-Calmettes
Verified postcode
Marseille, France· Recruiting

Common questions

What is a 'database' in this study?

It's like an organized collection of many patients' health records and information about their ovarian cancer, all kept together for research purposes.

Will my personal details be shared?

No, your information will be anonymised or de-identified, meaning your name and other personal details will be removed before it's used for research. Your privacy is protected.

Do I need to do anything if I'm included?

No, you don't need to do anything specific. Your existing medical records are simply used by researchers in an anonymous way.

How does this help people with ovarian cancer?

By looking at lots of patient data, researchers can learn more about the disease, discover patterns, and understand which treatments work best, ultimately aiming to improve future care.

Can I choose not to have my information included?

Yes, you have the right to say you don't want your information included in the database at any time. This decision will not affect your medical care.

How to find out more

Dominique Genre, MD

drci.up@ipc.unicancer.fr 0033491223778 Official trial record

Always speak to your GP or specialist before deciding to take part in a study.