The UK Young Stroke study exploring the demographics, risk factors, investigation and outcomes of ischaemic and haemorrhagic strokes in patients aged 18-49 years old in the UK
The UK Young Stroke Study (UKYSS) is exploring strokes that occur in people aged 18 to 49. Even though stroke rates are generally falling, they are rising in younger adults. This study aims to understand the reasons behind these strokes, how they are investigated, and what happens to people in the long term, both physically and emotionally. By gathering information from many young stroke survivors across the UK, researchers hope to identify common factors and predict who might face certain challenges after a stroke. This knowledge can then be used to improve support, develop better public health strategies, and train healthcare professionals more effectively to help young stroke patients.
At a glance
What is this study about?
Imagine a tree where some branches are blocked, stopping essential sap from reaching certain leaves – that's a bit like an ischaemic stroke where a blood clot blocks blood flow to part of the brain. Or, imagine a leaky pipe causing a flood – that's like a haemorrhagic stroke, where bleeding occurs in the brain. Strokes can happen at any age, but this study focuses specifically on people aged 18 to 49 years old. While we often think of stroke as an older person's condition, it's becoming more common in younger adults in the UK. When a stroke happens at a younger age, it can dramatically change a person's life, affecting their ability to work, their family relationships, and their overall well-being for many years.
The UK Young Stroke Study (UKYSS) wants to learn more about why strokes happen to younger people and what the long-term effects are. Are there common causes? Are there better ways to help people recover? The UK has a very diverse population, and this study aims to understand young stroke across all these different communities. Currently, there isn't enough information about how best to support young stroke survivors, and many struggle with things like anxiety, depression, and tiredness long after their stroke. This research will also look at how many young people return to work or might have another stroke in the future.
By gathering information about thousands of young stroke patients across the UK, the study hopes to build a clearer picture. This improved understanding will help doctors and other healthcare professionals give better advice and support. It could also lead to new ways to prevent strokes in younger people or help identify those most at risk. Ultimately, the goal is to make a real difference to the lives of young stroke survivors and their families by improving care and support.
Key takeaways
- The study explores strokes in adults aged 18-49 in the UK.
- It aims to improve understanding and support for young stroke survivors.
- Participation involves sharing anonymised medical records and completing a questionnaire.
- No new treatments or hospital visits are part of the study.
- Results will help shape future healthcare policies and professional training.
Who may be eligible?
This study is looking for people who are aged between 18 and 49 years old (inclusive).
You would be eligible to take part if you have had your first ever stroke, and it was either an 'ischaemic stroke' (which means a blood clot blocked blood flow to the brain) that was confirmed by a brain scan or clear symptoms, or a 'haemorrhagic stroke' (which means bleeding in the brain) that was confirmed by a brain scan.
However, you wouldn't be able to join if you've had a stroke before, or if your stroke was caused by a head injury, surgery, or specific types of bleeding or clotting that are different from the main types being studied.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Are you between 18 and 49 years old?
- Was this your very first stroke?
- Was your stroke confirmed by a brain scan or clear clinical symptoms?
- Was your stroke not caused by a head injury or surgery?
What does participation involve?
If you are eligible, someone from the participating hospital will get in touch with you, either directly or through a family member if needed. The study will mainly use information that has already been collected as part of your normal care in the NHS, but all your personal details that could identify you will be removed (anonymised) to protect your privacy. You will also be invited to fill out a questionnaire about your life after stroke, which will help researchers understand the common challenges young stroke survivors face. There are no extra hospital visits, medications, or specific follow-up appointments required just for this study. The study aims to run from June 2023 until December 2025, but your involvement mainly consists of allowing your anonymised medical information to be used and, if you choose, completing the questionnaire.
Potential risks and benefits
Locations (6)
- Royal Stoke University HospitalApproximateStoke-on-trent, England
- Mid Cheshire Hospitals NHS Foundation TrustCity onlyCrewe, England
- Liverpool University Hospitals NHS Foundation TrustCity onlyLiverpool, England
- The Royal Wolverhampton NHS TrustCity onlyWolverhampton, England
- The Shrewsbury and Telford Hospital NHS TrustCity onlyShrewsbury, England
- Sandwell and West Birmingham Hospitals NHS TrustUnverifiedSmethwick, England
Common questions
What's the main goal of this study?
To understand why strokes happen in younger adults (18-49) in the UK and what the long-term effects are, so we can improve care.
Will I have to take any new medicine or have extra appointments?
No, this study mainly uses existing medical information and asks you to complete a questionnaire. No extra clinic visits or new treatments are involved.
How will my personal information be kept private?
All information collected will be anonymised, meaning your personal details that could identify you will be removed before analysis.
When will the results of the study be ready?
The study is expected to run from June 2023 to December 2025. Simplified results will be shared with participants and patient organisations.
Who is paying for this research?
Keele University in the UK is funding this study.
How to find out more
Phillip Ferdinand
Always speak to your GP or specialist before deciding to take part in a study.
Discussion
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