Online remote behavioural intervention for tics
The ORBIT-UK study is checking out a new online training program for young people aged 9 to 17 who have Tourette Syndrome or similar tic conditions. Many young people struggle to get help for their tics because there aren't enough trained therapists. This new online program, guided by coaches, hopes to make therapy more available. Researchers want to see if this internet-based approach is easy for families to use, if people like it, and if it could be a good option for the NHS in the future. The study involves a 10-week online therapy program with support from a coach, and participants will fill out questionnaires to share their experiences. It's funded by the National Institute for Health and Care Research.
At a glance
What is this study about?
Tourette Syndrome (TS) is a condition that affects about 1 in 100 children and young people across England. It can cause involuntary movements or sounds called 'tics', which can sometimes be upsetting or make everyday life a bit harder. While we know that a type of talking therapy, called behavioural therapy, can be very helpful for managing tics, it's often hard for young people to get this support. This is mainly because there aren't enough therapists who are trained in this special area.
The ORBIT-UK study is trying to solve this problem by testing a brand-new online programme. This programme is designed specifically for young people with tics to learn ways to manage them. The idea is that instead of having to go to face-to-face appointments, young people can access this therapy from home, at times that suit them. They won't be alone though; they'll have support from a trained 'Coach' through messages on the platform.
The main goal of this study is to see if this online approach is easy and enjoyable for young people and their families to use. The researchers also want to find out if it effectively helps reduce tics and improves their day-to-day life. If successful, this online therapy could become a more accessible way for many more young people in the UK to get the help they need through the NHS.
Key takeaways
- Online program for young people (9-17) with Tourette Syndrome/tic disorders.
- Aims to make behavioural therapy more accessible.
- Involves 10 weeks of online therapy with coach support.
- Tests if the platform is easy to use and helps reduce tics.
- You'll share your experiences through surveys and interviews.
- Funded by the National Institute for Health and Care Research.
Who may be eligible?
This study is looking for young people aged 9 to 17 years old who have been told they likely have, or definitely have, Tourette Syndrome or a similar tic condition. Your tics should be causing you some moderate to severe difficulties.
You'll need to have internet access and regularly use a computer, laptop, tablet, or mobile phone. A parent or guardian aged 18 or over will also need to be willing to support you through the program. Importantly, a doctor or healthcare professional involved in your usual care will need to confirm that this online therapy is suitable for you.
You wouldn't be able to join the study if your tics are due to a different condition called Functional Neurological Disorder, or if you have severe learning disabilities. Also, if there are immediate concerns about your safety or if you or your parent can't speak or read English, you wouldn't be able to take part.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Are you between 9 and 17 years old?
- Do you have Tourette Syndrome or a chronic tic disorder with moderate to severe tics?
- Do you have regular internet access and use a device (computer, phone)?
- Is there a parent or guardian over 18 who can help you with the program?
- Has your usual doctor or healthcare professional said this study might be right for you?
- Are you and your parent/guardian able to speak and read English?
What does participation involve?
If you join the study, your involvement will last for around 12 weeks. During this time, you'll work through 10 online chapters of therapy aimed at helping you manage your tics. This involves watching videos, doing exercises, and tracking your progress. For 10 of these weeks, you'll have regular contact with a 'Coach' who will support you through messages on the online platform.
To help the researchers understand how well the programme works, you'll be asked to fill out some questionnaires and possibly have interviews. These will happen before you start the therapy, while you're doing it, and after you finish. These questions will cover things like how bad your tics are, your quality of life, and how happy you are with the therapy.
Potential risks and benefits
Locations (1)
- Nottinghamshire Healthcare NHS Foundation TrustCity onlyNottingham, England
Common questions
What exactly are 'tics'?
Tics are sudden, quick, and involuntary movements or sounds. They can be simple, like blinking or nose twitching, or more complex, like head jerking or repeating words.
What kind of therapy is this?
It's a type of behavioural therapy often called Exposure and Response Prevention (ERP). It helps you learn to manage your tics by changing how you respond to the urges you feel before a tic.
Who are the 'Coaches'?
Coaches are trained professionals who will guide you through the online programme. They will support you by sending messages on the platform, helping you understand the exercises.
How long will I be in the study?
You'll be involved in the study for about 12 weeks in total, with 10 weeks of active therapy and coach support.
Can I do the therapy whenever I want?
Yes, it's an online platform, so you can work through the therapy chapters and exercises at times that suit you, usually from home.
How to find out more
Bev Brown
Always speak to your GP or specialist before deciding to take part in a study.
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