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Active not recruitingNAINTERVENTIONAL

Digital Body Mindset Intervention for Young Cancer Survivors

This study is exploring whether a digital tool called EMBody can help young people aged 16-25 who have previously had cancer. EMBody is designed to help them develop positive ways of thinking about their bodies and life after treatment. It uses short, documentary-style films featuring other young survivors, doctors, and experts, alongside reflective activities. The programme aims to boost their health and overall wellbeing. Researchers will compare those using EMBody with a group who don't use it, to see if the digital tool makes a real difference to how they feel and think.

At a glance

Status
Active not recruiting
Phase
NA
Sponsor
King's College London
Enrolment target
105
Start
29 Nov 2024
Estimated completion
01 Oct 2026

What is this study about?

This study is about understanding how a new digital programme, called EMBody, can help young people aged 16 to 25 who have finished their cancer treatment. Finishing cancer treatment can be a big step, but it often brings new challenges, especially around how you feel about your body and your future. The aim of EMBody is to give young survivors tools to develop helpful ways of thinking, which can improve their overall health and happiness.

EMBody stands for "Exploring Mindsets about the Body." It's a short online programme made up of documentary-style films and activities that encourage you to reflect on your thoughts. These films feature other young people who have been through cancer, sharing their experiences and how their ways of thinking have helped them cope. You'll also hear from cancer doctors and psychological experts who explain what "mindsets" are and how they can be used positively.

The main goal of the study is to see if EMBody can truly help young cancer survivors think more positively and improve their health and wellbeing. To do this, researchers will compare participants who use EMBody with a group who are just completing study surveys, to understand the programme's impact.

Key takeaways

  • A digital programme for young cancer survivors (16-25).
  • Aims to improve how you think about your body and your overall health.
  • Uses short films and reflection activities, co-created with survivors.
  • You participate from home, no clinic visits needed.
  • Compares EMBody users with a group doing surveys to see its impact.

Who may be eligible?

To join this study, you need to be between 16 and 25 years old. You should have had a cancer diagnosis in the past, including types like leukaemia, lymphoma, or bone tumours. It's important that you have finished your main cancer treatment and it's been no more than seven years since you completed it.

There are also some reasons why you wouldn't be able to take part. For example, if you have severe difficulties with understanding digital materials or can't read and write in English. You also can't join if you are currently receiving active treatment for any cancer, or if it's been more than seven years since your treatment ended. If you are experiencing thoughts of self-harm, this study would not be suitable for you.

Could this study suit you?

Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.

  1. Are you aged between 16 and 25?
  2. Have you had a cancer diagnosis in the past?
  3. Have you finished your main cancer treatment?
  4. Is it no more than seven years since your treatment ended?
  5. Can you read and write fluently in English?
  6. Are you able to use digital materials online?
Answer every question to see your result.

What does participation involve?

This study involves using a digital programme called EMBody, which is online. It consists of three parts with short films and activities that you complete at your own pace. Researchers will compare those who use EMBody with a control group who will only complete surveys. The total duration of your involvement in the study will be explained, and it won't involve any hospital visits, medications, or specific follow-up appointments beyond the study assessments.

Potential risks and benefits

Taking part in this study could offer you the benefit of learning new ways to think about your body and improve your overall wellbeing after cancer treatment. The programme was created with input from young cancer survivors, so it aims to be relevant and supportive. As it's a digital programme, there are no physical risks involved. If you decide to join, you are free to withdraw from the study at any time without giving a reason, and this will not affect your medical care.

Locations (1)

Some site locations are approximate. We're improving this — please verify with the trial team before travelling.
  • The Royal Marsden
    Verified postcode
    London, United Kingdom

Common questions

What exactly is EMBody?

EMBody is a digital programme with short films and activities designed to help young cancer survivors develop positive ways of thinking about their bodies and health.

How long does EMBody take to complete?

The programme is brief, with three modules that include seven short films and accompanying reflection activities. The exact total time will be explained when you join the study.

Do I need to go to a clinic or hospital for this study?

No, this is a digital study, so you can take part from home or wherever you can access the internet. There are no in-person visits required.

What happens if I don't want to continue with the study?

You are completely free to stop participating at any time, for any reason, without it affecting your medical care.

Who created the EMBody programme?

EMBody was developed with the help of young cancer survivors themselves, expert children's cancer doctors, and documentary filmmakers.

How to find out more

Always speak to your GP or specialist before deciding to take part in a study.

Discussion

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