Cohort of Chronic Pain Patients
Dealing with ongoing pain can be really tough, affecting millions of people in the UK and worldwide. Current treatments don't always work well and can have side effects. This study aims to tackle this by creating a special app called e-DOL for people with chronic pain and a related website for their doctors and nurses. The idea is to gather lots of information, like how pain affects sleep, mood, and daily activities, to build a clearer picture of chronic pain. This will help researchers and healthcare teams understand individual pain journeys better, leading to more tailored and effective care in the future. It’s about using technology to improve how we manage, and ultimately live with, chronic pain.
At a glance
What is this study about?
Imagine a world where managing ongoing pain is a little easier, and where your healthcare team truly understands your unique pain journey. That's what this study, called 'e-DOL', is trying to achieve. Many people in the UK live with chronic pain – that's pain that lasts for a long time. It can make everyday tasks difficult, affect work, and generally impact quality of life. Unfortunately, current treatments don't always provide enough relief and can sometimes come with unwanted side effects.
This study aims to make things better. Researchers are creating a special smartphone app for people with chronic pain and a linked computer program for their doctors and nurses in pain clinics. The app, called e-DOL, will help gather lots of useful information about your pain, such as how it affects your sleep, mood, and daily activities. It will also track the treatments you try and how well they work for you. This isn't just about collecting data; it's about building a comprehensive picture of chronic pain in real-life situations.
By gathering this detailed information from a large group of people over time, doctors and researchers hope to understand chronic pain much more deeply. This 'big picture' will help them see patterns, understand what works best for different people, and ultimately develop new and better ways to manage pain. The goal is to improve the care you receive and help you live a better quality of life, even with ongoing pain.
Key takeaways
- A new app called e-DOL helps people with chronic pain and their healthcare teams.
- The study aims to understand chronic pain better to improve future care.
- You'll use a smartphone app to log details about your pain and daily life.
- This study helps gather a 'big picture' of chronic pain from real-life experiences.
- Participation lasts for two years and involves regular app use.
Who may be eligible?
To take part in this study, you need to be an adult (18 years or older) who experiences chronic pain. Chronic pain simply means pain that has lasted for a long time.
You also need to own a smartphone and be comfortable using it regularly because the study relies on a special app. Finally, you must agree to take part in the study; your participation is completely voluntary.
However, if you find it difficult to understand or answer questionnaires, this study might not be suitable for you.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Are you 18 years old or older?
- Do you have long-lasting, chronic pain?
- Do you own a smartphone and use it regularly?
- Are you comfortable understanding and answering questions on an app?
What does participation involve?
If you decide to take part, you'll be using a special smartphone app called e-DOL. This app will help you record information about your pain, including how it affects your sleep, activities, and mood. It will also track your treatments. You'll complete questionnaires and weekly updates through the app. This information will be shared with the pain clinic, and also linked to your health insurance data (anonymously, so your personal details are protected) to give a fuller picture of your health over time. The study will follow you for 24 months, which is two years.
Potential risks and benefits
Locations (22)
- CHU de Clermont-Ferrand - Service de NeurologieVerified postcodeClermont-Ferrand, France· Recruiting
- Clermont-Ferrand University HospitalVerified postcodeClermont-Ferrand, France· Recruiting
- APHP Ambroise ParéVerified postcodeBoulogne-Billancourt, France· Recruiting
- APHP Saint AntoineVerified postcodeParis, France· Recruiting
- APHP CochinVerified postcodeParis, France· Recruiting
- Groupe Hospitalier Paris Saint JosephVerified postcodeParis, France· Recruiting
- CHU AmiensVerified postcodeAmiens, France· Recruiting
- CH BayeuxVerified postcodeBayeux, France· Not yet recruiting
- CHU bordeauxVerified postcodeBordeaux, France· Not yet recruiting
- Hospices civils LyonVerified postcodeBron, France· Recruiting
- CHU GrenobleVerified postcodeGrenoble, France· Recruiting
- CHU LimogesVerified postcodeLimoges, France· Recruiting
Common questions
What is chronic pain?
Chronic pain is pain that lasts for a long time, often several months or longer, and can significantly impact daily life.
What is the e-DOL app?
The e-DOL app is a smartphone application designed to help people with chronic pain track their symptoms, how they feel, and their daily activities, which then helps healthcare professionals.
How long will I be in the study?
If you join, you will be followed for a period of 24 months, which is two years.
Will using the app replace my current pain treatment?
No, the e-DOL app is designed to support your care and gather information, not to replace any of your current treatments or advice from your doctor.
Is my personal information safe?
Yes, all your information will be handled very carefully and confidentially. It will be linked with health insurance data in a way that protects your personal identity.
How to find out more
Lise Laclautre
Always speak to your GP or specialist before deciding to take part in a study.
Interested in taking part?
Discussion
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