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Large Language Model for Understanding and Monitoring Elderly Neurocognition

This study is looking at a new AI-powered tool called LUMEN, which helps shape conversations about memory and thinking problems for people with dementia. Currently, doctors rely on family members or carers to explain changes they've noticed, but these conversations can sometimes be difficult and incomplete. LUMEN is designed to ask structured questions, helping carers provide clear, organised information to memory clinic doctors. We want to see if LUMEN makes assessments quicker, more accurate, and less stressful. The study will involve caregivers and doctors using the tool and sharing their feedback. We're also working with community groups to ensure it's easy to use for everyone, no matter their background. If successful, LUMEN could greatly improve dementia care in the NHS.

At a glance

Status
Recruiting
Sponsor
Northumbria Healthcare NHS Foundation Trust
Enrolment target
60
Start
19 Mar 2026
Estimated completion
31 Dec 2026

What is this study about?

Dementia is a serious condition that affects millions of people, and getting a diagnosis early is really important for accessing the right care and support. Often, doctors learn about changes in memory and thinking from family members or carers – this is called a collateral history. However, these conversations can sometimes be tricky. Carers might find it hard to remember everything, explain symptoms clearly, or even just find the time to give a full picture. This can make the process of diagnosing dementia longer and more challenging.

This study is looking at a new AI (Artificial Intelligence) tool called LUMEN. Think of LUMEN as a helpful conversation guide. It's designed to assist carers in describing their loved one's symptoms more effectively. By gently guiding the conversation with clear questions, LUMEN aims to help carers put together a detailed and organised report for the doctors at memory clinics. The main goal here is to make the process of gathering information quicker, more accurate, and less stressful for everyone involved.

We will be testing LUMEN in real memory clinics across the UK. Carers and doctors will have the chance to use it and give us their feedback. We want to understand if it's easy to use, whether the information it gathers is better, and how it could fit into the way memory clinics currently work. We’re also holding workshops with different community groups to make sure the tool is suitable and accessible for people from all walks of life, regardless of their cultural background or the language they speak. If LUMEN proves to be successful, it could mean faster diagnoses, less pressure on carers, and ultimately, more people getting the dementia support they need sooner.

Key takeaways

  • This study explores a new AI tool (LUMEN) to help describe dementia symptoms.
  • It aims to make dementia diagnosis faster and more accurate for memory clinics.
  • Carers and doctors will test the tool and provide feedback.
  • The research wants to reduce stress for families and improve dementia care.
  • Workshops will ensure the tool is accessible to diverse communities.
  • No specific age limits for patients, but carers must be 18+.

Who may be eligible?

This study is looking for carers of people who are attending memory clinics. To take part as a carer, you need to be 18 years old or over and be able to give your consent to participate. You also need to have a basic understanding of English so you can interact with the tool and study materials.

We are also looking for doctors to take part. Doctors need to have at least two years of experience specifically in dementia care and be directly responsible for diagnosing dementia in their patients. Like carers, doctors must also be able to provide informed consent to participate.

Could this study suit you?

Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.

  1. Are you a carer for someone attending a memory clinic?
  2. Are you 18 years old or older?
  3. Do you have a basic understanding of English?
  4. Are you a doctor with at least 2 years of specialist dementia care experience?
  5. Are you personally responsible for diagnosing dementia?
Answer every question to see your result.

What does participation involve?

If you decide to take part in this study as a carer, you will be invited to use the LUMEN software when preparing to share information about your loved one's symptoms. You will then be asked to provide feedback on your experience. For doctors, participation would involve using LUMEN in your clinic practice and sharing your thoughts on its usefulness and impact. The exact number of visits or the total time commitment will depend on the specific stage of the study you are involved in and will be fully explained to you before you agree to take part. There are no medications involved in this study, as it focuses on a software tool.

Potential risks and benefits

A potential benefit of taking part is contributing to research that could improve dementia diagnosis and support for many families in the future. By sharing your experience, you can help make LUMEN the best it can be. As this is a software-based tool, direct physical risks are very low. However, interacting with the tool and discussing your experiences may take some of your time and effort. You are free to withdraw from the study at any time without giving a reason, and this will not affect the care you or your loved one receives.

Locations (1)

Some site locations are approximate. We're improving this — please verify with the trial team before travelling.
  • North Tyneside General Hospital is Rake Lane
    Verified postcode
    North Shields, United Kingdom· Recruiting

Common questions

What is LUMEN?

LUMEN is an AI-powered conversational tool designed to help carers explain a person's dementia symptoms more clearly to memory clinic doctors.

Who is eligible to take part in this study?

Carers of people attending memory clinics (aged 18+, basic English) and doctors with at least two years of dementia diagnosis experience can participate.

What will I have to do if I take part?

If you're a carer, you'd use the LUMEN tool and then give us your feedback. If you're a doctor, you'd use LUMEN in your clinic and share your opinion.

What are the benefits of this research?

This research could lead to quicker, more accurate dementia diagnoses and better support for patients and their families by improving how information is shared.

Will my personal data be kept private?

Yes, all data collected will be handled carefully and kept confidential, in line with strict privacy regulations, to protect your identity.

How to find out more

Judith R Harrison, MBChB

Always speak to your GP or specialist before deciding to take part in a study.

Interested in taking part?

Register your interest

Share your details and the research team for "Large Language Model for Understanding and Monitoring Elderl…" will contact you if you may be eligible. Always speak to your GP before agreeing to take part.

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