Active not recruitingNAINTERVENTIONAL

Children's Hospital Academic Medical Organization (CHAMO) MyChart Study

This study from the Children's Hospital Academic Medical Organization (CHAMO) is exploring a new way to manage Type 1 Diabetes in children. Modern diabetes care means a lot of ongoing information needs to be collected. This often takes up a lot of time during clinic visits, meaning less time is spent discussing care. Researchers have developed an online form, part of the secure MyChart system, where families can enter their child's diabetes information before their appointment. The study wants to see if using this online questionnaire improves the quality of care, helps manage diabetes better, and makes clinic visits more efficient for everyone. They hope it will show an effective way to improve diabetes care by pre-collecting information.

At a glance

Status

Active not recruiting

Phase

Sponsor

Children's Hospital of Eastern Ontario

Enrolment target

200

Start

03 Apr 2023

Estimated completion

01 Dec 2025

Diabetes Mellitus, Type 1

What is this study about?

Dealing with Type 1 Diabetes means keeping track of lots of details and sharing them with doctors regularly. In the past, this often meant spending a lot of time during clinic appointments just giving information, leaving less time to talk about your child's specific diabetes care.

To help with this, researchers at the Children's Hospital Academic Medical Organization (CHAMO) have created a new online questionnaire. This questionnaire is part of the secure MyChart system, which many families already use. The idea is that families can fill in their child's diabetes information at home, before their actual clinic visit. This information then goes directly into the doctor's electronic records.

This study aims to find out if using this online form makes a real difference. They want to see if it improves the quality of care families feel they receive, helps children manage their diabetes more effectively, and makes clinic appointments run more smoothly. The results of this study could be very important, showing a new way to use technology to improve care not just for diabetes, but for other conditions too.

Key takeaways

This study explores using an online form (MyChart) for diabetes information.
It aims to make clinic visits more efficient and focused on care.
Children with Type 1 Diabetes under 11 years old may be eligible.
Participation involves filling out a questionnaire before appointments.
It could help improve the quality of diabetes care for families.

Who may be eligible?

This study is looking for children who have Type 1 Diabetes. To take part, your child must be younger than 11 years old when they join the study. This means they cannot be 11 years old or older at the time of signing up.

It's important that parents or guardians, and the child (if they are old enough to understand and agree), are able to speak and understand English well enough to complete all parts of the study. If your child is already attending a special clinic for eating disorders or youth protection services, they won't be able to join this study because of how the MyChart system works in those cases.

Also, families and children must be willing and able to agree to take part in the study. If you're not able to give your consent, or your child isn't willing to agree (if they're old enough to do so), then unfortunately, they won't be able to participate.

Could this study suit you?

Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.

My child has Type 1 Diabetes.
My child is currently under 11 years old.
I can speak and understand English well enough for the study.
My child is not being followed by an Eating Disorder Clinic or Youth Protection Clinic.
I am willing and able to agree to my child taking part in research.

Answer every question to see your result.

What does participation involve?

This study involves using a special online questionnaire through the MyChart system before your child's regular diabetes clinic appointments. You will be asked to fill in information about your child's diabetes care at home. The study will then look at how this changes your clinic experience, your child's diabetes control, and how efficient the clinic visit feels. There are no extra visits or medications involved beyond what your child would normally have for their diabetes care. The total duration of your participation will be discussed with you by the study team.

Potential risks and benefits

The main benefit of taking part could be a more efficient and focused clinic visit, potentially leading to better discussions about your child's diabetes care. There are very few risks expected, as you would simply be entering information you would normally share with your doctor, just at a different time. Your information will be kept private and secure. Remember, participation is completely voluntary, and you have the right to withdraw your child from the study at any time without affecting their usual medical care.

Locations (1)

Children's Hospital of Eastern Ontario - Research Institute
Verified postcode
Ottawa, Canada

Common questions

What is MyChart?

MyChart is a secure online system that lets you see parts of your child's health record and communicate with their healthcare team.

Do I have to do anything extra if I join the study?

The main thing you'll do is fill out an online questionnaire about your child's diabetes before their regular clinic appointments, rather than just discussing it all during the visit.

Will this change my child's regular diabetes care?

No, the study aims to improve how information is collected, not change the medical treatment or care your child receives for their diabetes.

How long will my child be in the study?

The study team will explain the exact duration when you discuss joining. It doesn't involve long-term extra commitments.

Is my child's information safe?

Yes, all information entered into MyChart is secure and kept confidential, just like with other medical records.