Observational Study for Assessing Treatment and Outcome of Patients With Primary Brain Tumours Using cIMPACT-NOW and 2021 WHO Classification

To be part of this study, you must be at least 18 years old. You need to have been recently diagnosed with certain types of primary brain tumours, or have a brain tumour that has come back. For the study to work, doctors need to have some of your tumour tissue saved from your initial surgery. They also need to be able to look at your brain scans (like MRI or CT scans) from when your brain tumour was first found. Finally, you would need to give your permission to be included.

If a patient has sadly passed away, their information (such as medical records, tumour samples, or scans) can still be used under specific circumstances. This is only allowed if they agreed to it during their lifetime, or if a close family member gives permission. There are also legal safeguards to ensure this is done respectfully and ethically, and only if there's no record of the patient having objected to their data being used for research.

This is an 'observational' study. This means you wouldn't receive a specific treatment as part of the study itself. Instead, the researchers would collect information about your existing brain tumour and the treatments you are already receiving as part of your standard care. They would look at details from your medical records, such as your diagnosis, the type of treatment you had, and how you responded to it. They would also use samples of your tumour tissue saved from surgery and copies of your brain scans. There are no extra visits or procedures required specifically for this study. The duration of your involvement would depend on how long information is collected on your specific condition as part of their ongoing data collection.