Register Schweres Asthma - German Asthma Net e.V.

This study is looking for children, teenagers, and adults who have been diagnosed with severe asthma by a doctor. For younger people (aged 6-18), it means their asthma symptoms haven't been well controlled over the last year, even though they've been taking regular, high doses of asthma medication. Doctors would also have checked that other breathing problems aren't causing your symptoms.

For everyone, whether child or adult, you would need to be taking a high level of asthma treatment already. This could be high doses of inhaled steroids, or a combination of different asthma medicines. Despite this treatment, you would still be experiencing significant asthma symptoms, like frequent wheezing, needing your reliever inhaler often, or waking up at night because of your asthma. Your lung function might also be low.

There are also some reasons why you might not be able to join. For example, if you have other serious lung conditions like cystic fibrosis, or other major ongoing health problems, you probably wouldn't be able to take part. This helps make sure the study focuses clearly on understanding severe asthma.

If you join this study, the doctors will record various details about your health. This includes things like your gender and date of birth, your asthma diagnosis, and the treatments you're currently using. They will also note down your lung function test results, blood test results (like your IgE levels and eosinophil count), how well your asthma is controlled (e.g., how often you have symptoms or need your rescue inhaler), and if you smoke.

This information will first be collected when you start the study. After that, you'll have a follow-up visit once a year where this information will be updated. This will continue for a total of 15 years. You will be given a special ID number to protect your privacy, meaning your personal details are kept separate from your health information.