EuroSIDA - Clinical and Virological Outcome of European Patients Infected With HIV
The EuroSIDA study is a large, ongoing research project collecting information from over 23,000 people living with HIV across many European countries, as well as Israel and Argentina. Since 1994, it has been tracking their health, treatments, and how their bodies react over many years. The main goal is to understand the long-term effects of HIV and other related conditions like Hepatitis B and C, as well as diabetes and kidney problems. This study has been vital in showing how treatments like combination anti-retroviral therapy (cART) have drastically improved the lives of people with HIV. Now, it's focusing on how newer treatments for conditions like Hepatitis C are helping, especially for those living with both HIV and Hepatitis C.
At a glance
What is this study about?
The EuroSIDA study is a really important, long-running project that collects health information from many thousands of people living with HIV across Europe and some other countries. Since 1994, it has been carefully watching how HIV affects people's health over time, what treatments they receive, and how different health problems develop alongside HIV. This helps doctors and researchers understand the illness better and how current and new medicines work in the real world.
Originally, the study was crucial in understanding the big improvements in health and life expectancy when powerful HIV treatments first became available. Now, it continues to track changes in people's health, including conditions like Hepatitis B and C, heart problems, diabetes, and kidney issues, which can be more common in people with HIV. It also closely monitors how new treatments, such as those for Hepatitis C, are affecting people living with both HIV and Hepatitis C.
By gathering all this information from so many people over such a long time, the EuroSIDA study helps healthcare professionals understand how HIV and its related conditions are changing across different parts of Europe. This knowledge is really valuable for developing better care and guidance for people living with HIV now and in the future.
Key takeaways
- It's a long-running study helping understand HIV in Europe.
- It collects routine health information from patient records.
- It helps doctors understand treatments for HIV and related conditions like Hepatitis C.
- Your personal details are kept private and secure.
- Your participation helps improve care for others in the future.
- You can leave the study at any time without affecting your care.
Who may be eligible?
To be part of the EuroSIDA study, you generally need to be an adult (16 years or older) and living with HIV-1. The study is also particularly interested in people who also have Hepatitis C.
There are a few reasons why someone might not be able to join. For example, if you've already been part of an earlier stage of the EuroSIDA study, or if enough people similar to you have already joined from your area.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Are you 16 years old or older?
- Do you have HIV-1?
- Are you also positive for Hepatitis C antibodies?
- Have you not been enrolled in an earlier EuroSIDA study group?
What does participation involve?
This study is an 'observational' study. This generally means you won't be given any experimental new medications as part of the study itself. Instead, the doctors and nurses involved will collect information from your routine clinic visits and medical records. This includes details of your HIV infection, any other health conditions you have, the medications you take, and results from your blood tests. This information is then gathered together (without your name attached) to help researchers learn from a large number of people. Your involvement would not typically require extra visits or changes to your usual care, and the study will continue to collect this information over a long period from your clinic.
Potential risks and benefits
Locations (110)
- Hospital JM Ramos MejiaVerified postcodeBuenos Aires, Argentina
- Medical University InsbruckVerified postcodeInnsbruck, Austria
- Otto Wagner SpitalVerified postcodeVienna, Austria
- GOCGEIOZ - Gomel Regional Centre for HygieneVerified postcodeHomyel, Belarus
- Gomel State Medical UniversityVerified postcodeHomyel, Belarus
- Belarus State Medical UniversityVerified postcodeMinsk, Belarus
- Institute of Tropical MedicineVerified postcodeAntwerp, Belgium
- CHU Saint-PierreVerified postcodeBrussels, Belgium
- University Ziekenhuis GentVerified postcodeGhent, Belgium
- Klinicki centar Univerziteta Sarajevo (KCUS)Verified postcodeSarajevo, Bosnia and Herzegovina
- University Hospital of Infectious DiseasesVerified postcodeZagreb, Croatia
- Charles University Hospital PlzeňVerified postcodePilsen, Czechia
Common questions
What kind of information will they collect about me?
They will collect information from your usual medical records, including details about your HIV, any other health conditions, your treatments, and blood test results.
Will taking part in this study change my medical treatment?
No, this study collects information from your routine care and does not involve giving you new or different treatments. Your doctors will continue to provide the best care for you.
Will my information be kept private?
Yes, all your personal information is kept strictly confidential. Your name will not be shared with researchers, only your anonymised health data.
How long will I be in the study?
This is a long-term study that continues to collect information over many years from participants' routine clinic visits.
What if I change my mind about being in the study?
You are free to withdraw from the study at any time without it affecting your medical care or relationship with your doctor.
How to find out more
Always speak to your GP or specialist before deciding to take part in a study.
Interested in taking part?
Discussion
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